Hi, so nice to see a site like this. I've looked for supportive groups before on my condition but haven't found many I have SLE which has brought on Lupus Panniculitis and Lipodystrophy when I have a flare up. They all work in conjunction with one another. Basically subcutaneous fat cells become inflamed with the Panniculitis, then Lipodystrophy takes place, killing them off completely. My face and body have been left disfigured and my whole days thoughts are taken up by how I look. It affects me when I'm out and around people.. and has just completely changed me as a person. It's also affecting my relationship. I just don't feel like myself anymore, It's completely taken over my life I just wondered if anybody else had Lipodystrophy/Lipoatrophy? Has anyone ever got any help with dealing with the way they looked? P.S - sorry, just left my profile as it was
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